Resources

Some parts of this list contains links to external sites. By linking to these sites the World Privacy Forum is not endorsing the viewpoints of the sites, and cannot guarantee their privacy practices.

World Privacy Forum links

WPF Reports and Studies (listed by name of report)

The World Privacy Forum specializes in in-depth reports and research, including longitudinal research. WPF reports range from 6 months to one and a half years in their research.

• A Year in the Life of an Online Job Scam: Pt. I of the World Privacy Forum Report on Online Job Scams (HTML) July 7, 2004.

• A Year in the Life of an Online Job Scam: Pt. I of the World Privacy Forum Report on Online Job Scams (PDF ) July 7, 2004.

• A Year ............Timeline: The Evolution of an Online Job Scam (HTML) July 7, 2004

• CALL DON'T CLICK UPDATE: Still be Smart About Ordering Federally Mandated Credit Reports (PDF ) July 14, 2005.

• CALL DON'T CLICK UPDATE: EXECUTIVE SUMMARY (HTML) July 14, 2005

• CALL DON'T CLICK ORIGINAL STUDY (PDF) February 25, 2005

• Job Application Kiosks   (PDF )November 11, 2003

• Job Searching in the Networked Environment: Consumer Privacy Benchmarks  (PDF) November 11, 2003.

• Job Search Privacy Study Executive Summary(PDF )November 11, 2003

• Medical Identity Theft: The Information Crime that Can Kill Full report PDF , 56 pages. May 3, 2006

• Medical Identity Theft  Executive Summary(PDF) May 3, 2006

• Personal Health Records: Why Many PHRs Threaten Privacy (PDF) February 20, 2008

• Privacy in the Clouds: Risks to privacy and confidentiality from cloud computing (PDF) February 23, 2009

• The Network Advertising Initiative: Failing at Consumer Protection and at Self Regulation (PDF) November 2, 2007.

• Red Flag and Address Discrepancy Requirements: Suggestions for Health Care Providers (PDF) September 24, 2008

• Resume Database Nightmare: Job Seeker Privacy at Risk (Interim Report of the 2003 Online Job Search Privacy Study) ( HTML) February 19, 2003

Other WPF Documents

The World Privacy Forum publishes an array of other documents, such as research-focused timelines and issue briefs. For a complete listing see the Topics A-Z page.

• AOL Data Breach [FTC Complaint]

• Do Not Track proposal: Consumer Rights and Protections [consensus document] October 31, 2007.

• Fair Information Practices [issue brief]

• NHIN Timeline [timeline]

• Responses to Medical Identity Theft: Eight Best Practices for Helping Victims. [research, proposed best practices] October 16, 2007

WPF Testimony and Key Speeches (listed by date)

Only key testimony and speeches are listed here. For a more complete listing, see the Events page or the Topics A-Z page.

• Secretary's Advisory Committee on Genetics, Health, and Society [testimony] February 13, 2008.

• FTC: Network Advertising Initiative [testimony] November 2, 2007.

• AHIMA Keynote: Medical Identity Theft Responses and Issues [speech] October 9, 2007.

• FDA: iPledge and Privacy Issues [testimony] August 1, 2007.

• FDA: RiskMAP Privacy [testimony] June 26, 2007.

• Network Security Workshop Keynote: Leading Privacy and Security Issues in the U.S. and Japan [speech]

• AHIC: PHRs and Privacy, Patient Authentication [testimony] Sept. 29, 2006.

• NCVHS: The NHIN and Privacy ...EHRs, Medical ID Theft, Data Breach, Security Issues [testimony] August 16, 2005.

• Privacy Issues and Implications of the new Federal ID Card HSPD-12 [testimony] January 19, 2005.

WPF Agency Comments

For a complete listing of World Privacy Forum agency work and comments, please see the Agency Comments Page.

WPF Consumer Tips, Guides, and FAQs.

Key World Privacy Forum consumer tips and Frequently Asked Questions.

• A Patient's Guide to HIPAA

• Access, Amendment, and Accounting of Disclosures: FAQs for Medical ID Theft Victims

• World Privacy Forum's Top Ten Opt Outs

• How to Place a Credit Freeze (Security Freeze)

• Cookie Opt Out Tips for Consumers

• Annualcreditreport.com tips (ordering credit reports online)

• Job Scam Tips for Consumers

• Job Seeker's Guide to Resume Privacy: 12 Resume Posting Truths

• The Potential Privacy Risks in Personal Health Records (Consumer advisory)

• Privacy Guide for Job Searching Online

• What to do About Medical ID Theft

• Search Engine Privacy Tips

• Privacy Guide for Job Searching Online (Interactive)

• Resume Database Information (Scroll to section VII). (From 2003 study)

• Monster.com Data Breach Consumer Alert

External Links

Fair Information Practices

OECD Fair Information Practices

OECD Privacy Statement Generator

Privacy Organizations, Individuals, Centers, Offices, Labs, Projects....

There are also some non-privacy focused entities in this list; they are listed because they have produced documents or policy relating to privacy.

ACLU -- Privacy

APEC Asia Pacific Economic Cooperation

also Fact Sheet on the APEC Privacy Framework (APEC)

Australian Government Office of Privacy Commissioner

Californians Against Telephone Solicitations

California Office of Privacy Protection

CALPIRG

Canadian Office of the Privacy Commissioner

Carnegie Mellon's Data Privacy Lab

CAUSE

CDT

Consumer Action

Consumers Association of Ireland

Consumer Federation of America

Consumer Reports' Web Watch

Consumers Union

Cryptorights Foundation

Cyber Rights & Cyber Liberties (UK)

Electronic Frontier Foundation

Electronic Privacy Information Center

European Digital Rights

Foundation for Taxpayer and Consumer Rights

Garante per la protezione dei dati personali (Italy)

GBDe

Global Internet Liberty Campaign (archive, data retention issues)

Japan Privacy Center

National Consumers League

OECD

PrivacyActivism

Privacy Foundation at Denver University School of Law

Privacy Rights Clearinghouse

Richard M. Smith

Robert Gellman

Samuelson Law, Technology, and Public Policy Clinic

Stanford Center for Internet and Society

Statewatch (EU)

Swiss Federal Data Protection Commissioner

Trans Atlantic Consumer Dialog

UK Information Commissioner's Office

US PIRG

Vortex | Privacy Forum

WEDI

Medical Information and Privacy Resources

A Patient's Guide to HIPAA

Bob Gellman's Health Privacy Bibliography

California Health Care Foundation

Carnegie Mellon HIPAA (technology)

Citizens' Council on Health Care

Gene Forum

Genetic Alliance

Georgetown University Center on Medical Record Rights & Privacy

Health Privacy Project

HHS Office of Civil Rights

LaTanya Sweeney (Genomic privacy; links to research)

NCVHS Reports

Office of Privacy Commissioner, New Zealand

Patient Privacy Rights

Privacy Rights Clearinghouse Fact Sheet on Medical Privacy

Workplace Privacy Resources

EPIC Workplace Privacy Page

Identity Angel Information

Privacy International

Privacy Rights Clearinghouse Fact Sheets on Background Checks, Financial Privacy

National Workrights Institute

Workplace Privacy - Australia, Roger Clarke

Privacy Publications

BNA Privacy & Security Law Report

Privacy Journal

Privacy Laws & Business (EU and International)

Privacy Times

Privacy related Blogs

27BStroke6

Bruce Schneier on Security

Concurring Opinions (Dan Solove)

Emergent Chaos

Lauren Gelman's Blog (Center for Internet and Society)

Mari Frank's Privacy Piracy (Radio, archived audio interviews)

Practical Nomad (Edward Hasbrouk)

Privacy Today

Privacy.org (web news updates)

U.S PIRG Blog

Vortex | Privacy Forum (news list and Fact Squad Radio)