WPF Executive Director Pam Dixon will be speaking on data, lending, and civil rights at the Georgetown University Law Center this Wednesday. She will be discussing research from her Scoring of America report, co-authored with Robert Gellman, and she will be highlighting new research on the topic of economically vulnerable ...
Telemedicine is rapidly advancing. The Mayo Clinic, Kaiser, and other health providers are already in testing to see how doctors can use sleek, rolling telemedicine robots to conduct remote patient interactions and allow for better visual diagnosing. In this video, the company Double Robotics walks us through how the robots look, move, and operate (via an iPad) and how they are already being used in clinical settings today.
This video is part of our Health Technology series which explores emerging and important health technologies Health sensors -- devices that can detect blood pressure and other bio readings -- have advanced tremendously in the past few years. While many are familiar with fitness devices that monitor activities such as ...
March 2, 2015 San Diego -- WPF Executive Director Pam Dixon will be presenting back-to-back workshops for the National Network to End Domestic Violence on how those working with this vulnerable population group can be skillful in handling and navigating health privacy issues. The conference will be in New Orleans ...
FOR IMMEDIATE RELEASE February 12, 2015 San Diego -- What should a parent or adult student do when a school asks for sensitive health information? What happens when a school offers a health clinic for treatment? What protects all of the sensitive health information at schools? This issue has been ...
Schools increasingly provide students with more health services. Health clinics, counselors on site, administration of drugs, and vaccinations are among the types of healthcare offered on school campuses ranging from kindergarten through graduate school. Given that schools may have sensitive health information, what law covers health record privacy for school records? The answer is important. It is also messy, because two laws can apply to this information. In some cases, no privacy law applies to the health records.
Key Consumer Tips for Anthem Breach Victims: Be alert for the key areas of attack post-breach, including Medical ID theft Victims of the Anthem data breach should be aware of three potential areas for risk after the breach: Medical identity theft Financial forms of identity theft Spear phishing and phishing ...
From advanced biosensors to healthy cities in China to robots and telemedicine, this is WPF's video capture of the key trends and technologies at the 2015 Consumer Electronic Show in Las Vegas. This video was premiered at Georgia Tech/Academy of Medicine on Data Privacy Day, 2015.
President Obama has announced that the White House will propose legislation for educational privacy reform. The administration needs to start with the basics and get FERPA right once and for all, because currently, FERPA is not doing the job it was intended to do. Here's a backgrounder on this educational privacy cornerstone.
President Obama announced a sweeping set of proposals around privacy today as he spoke from the venue of the FTC. The World Privacy Forum is pleased with the announcement, but retain some concerns. "We are pleased to see the Consumer Privacy Bill of Rights head into actual legislation at long ...
WPF is attending the Consumer Electronics Show in Las Vegas this week. We're focusing on privacy and health and fitness technology, smart home tech/Internet of Things, and education and kid tech. Throughout the week we will be bringing you a stream of thoughts, images, and short videos via our Twitter ...
We are delighted that our 2014 report, The Scoring of America , was discussed in the New York Times over the weekend. The Scoring of America was the first major report to discuss, analyze, and rigorously document the secret scores that determine many key aspects of Americans' financial, educational, health, ...
On Christmas Eve, the US National Security Agency (NSA) declassified and released 12 years of reports outlining compliance violations that were submitted to the NSA Intelligence Oversight Committee. The reports, which are required by law, had previously been classified and were the subject of a legal battle between the ACLU and the government. Although heavily redacted, the reports the NSA released of are vital interest to the public because they reveal a pattern of significant privacy violations and in some cases serious abuses in granular detail.
If you are a member of the National Network to End Domestic Violence, you can attend a free webinar for the SafetyNet Project on the top ten things you can do to improve medical privacy. Pam Dixon, executive director of World Privacy Forum, will be giving the webinar. When : ...
Pam Dixon will be speaking at the IAPP-FTC Practical Privacy Conference in Washington DC this week. The conference is from Dec. 2-3. Her panel talk will focus on privacy issues relating to identifiable large datasets and vulnerable populations. She will also be discussing the role of data brokers in compiling ...
This video is part 9 of a 14-part video series on health privacy and health information exchanges Video: Now that I know about health information exchanges, how do I know if my doctor or hospital is sharing my information? Not all health files are automatically exchanged in HIEs. To find ...
This video is part 8 of a 14-part video series on health privacy and health information exchanges Video: I just read the privacy policy at the doctor's office, and it said that I would have to opt out of an HIE. What does that mean exactly? Opt in and opt ...
This week the New York Times reported that some California members of health insurer Anthem Blue Cross received disturbing emails with exposed subject lines related to their sensitive medical information. From the article: " But the emails’ subject lines included member-specific demographic details like age range and language. They also ...
WPF urges FTC to focus on consumers' ability to control their digital exhaust and statistical parity for big data era At the FTC workshop on Big Data September 15, Big Data: Tool for Inclusion or Exclusion?, panelists including the World Privacy Forum discussed legal and ethical frameworks that are applicable ...
WPF submits comments to CFPB about the Universal Mortgage Identifier number and Home Mortgage Disclosure Act The World Privacy Forum has recommended privacy controls for a proposed Universal Home Mortgage Identifier number, along with other privacy protections to the Consumer Financial Protection Bureau in public comments on the Home Mortgage ...
The World Privacy Forum submitted public comments today to the National Science Foundation in response to its request for information about a national privacy research strategy. WPF urged a research focus on statistical parity and its implementation. Statistical parity is a term WPF's Pam Dixon coined at the FTC’s Big Data, Tool For Inclusion or Exclusion? workshop in September 2014. Here is Dixon's definition of the term:
The World Privacy Forum provided an intervention for the Civil Society Consultation on the Universal Periodic Review of the United States recommending that health information should only be disclosed for national security purposes pursuant to a judicial warrant, and that there must be procedures under which record keepers can challenge ...
The World Privacy Forum will be speaking about medical and health privacy rights in the Universal Periodic Review as part of the Civil Society Consultation for the United States. The UPR is an important cyclical process run under the auspices of the UN Human Rights Council. The last UPR was ...
You can certainly ask to have your records deleted, but it may not be that easy. After a health record has been created and exchanged via an HIE, how your record is managed in that HIE is going to vary considerably. But generally speaking, it is rare for any health care provider to outright delete a health file.
HIE stands for “Health Information Exchange.” We encourage all patients to request a copy of their medical records to check for errors, whether in paper or digital format. Begin any process of HIE discovery with your health care provider. It will likely be your health care providers who are able to let you know if your records have been exchanged, and if so, where.
