WPF filed comments with the Presidential Commission for the Study of Bioethics today urging the Commission to recognize the need for enhanced genetic privacy protections in a digital world. WPF noted that “The increasing identifiability of genetic data presents major privacy issues for research activities that must be acknowledged and addressed.” WPF suggested four key ways that Certificate of Confidentiality programs could be enhanced for privacy protection, and urged the Commission to speak out about the importance of protecting patient privacy in research activities involving genetic information. “The Commission should advocate providing patients with reasonable controls over research uses of their data as electronic records develop and spread throughout the health care system.” Public comments may be submitted to the Commission until May 25, 2012.

Genetic Privacy | Bioethics — WPF filed comments with the Presidential Commission for the Study of Bioethics today urging the Commission to recognize the need for enhanced genetic privacy protections in a digital world. WPF noted that “The increasing identifiability of genetic data presents major privacy issues for research activities that must be acknowledged and addressed.” WPF suggested four key ways that Certificate of Confidentiality programs could be enhanced for privacy protection, and urged the Commission to speak out about the importance of protecting patient privacy in research activities involving genetic information. “The Commission should advocate providing patients with reasonable controls over research uses of their data as electronic records develop and spread throughout the health care system.” Public comments may be submitted to the Commission until May 25, 2012.

Medical ID Theft — WPF has completely updated its landmark medical identity theft tips and advice for patients and consumers. “The new FAQcontains detailed advice for anyone who is a victim of medical ID theft, or is worried about becoming one,” says Pam Dixon. “The FAQ and our shorter consumer tips have been updated to reflect our most recent research.” In 2006, WPF published the first known report on medical ID theft and coined the term. Since then, WPF has been in the forefront of researching this crime and working to assist victims and those working with victims

World Privacy Forum information and materials on medical identity theft.

World Privacy Forum information and materials on medical privacy topics.