Video: What does “opt in” or “opt out” mean in a health information exchange?

This video is part 8 of a 14-part video series on health privacy and health information exchanges  Video: I just read the privacy policy at the doctor’s office, and it said that I would have to opt out of an HIE. What does that mean exactly? Opt in and opt out are terms that are

Some Californians receive emails from health insurer with personal details exposed: potential CalINDEX implications?

This week the New York Times reported that some California members of health insurer Anthem Blue Cross received disturbing emails with exposed subject lines related to their sensitive medical information. From the article: “But the emails’ subject lines included member-specific demographic details like age range and language. They also listed possible medical screening tests —

Public comments: WPF urges FTC to focus on providing statistical parity for consumers (Big Data workshop)

WPF urges FTC to focus on consumers’  ability to control their digital exhaust and statistical parity for big data era At the FTC workshop on Big Data September 15, Big Data: Tool for Inclusion or Exclusion?, panelists including the World Privacy Forum discussed legal and ethical frameworks that are applicable to large datasets and issues

Financial Privacy | Public Comments: WPF urges caution in creating new unique mortgage identifier number

WPF submits comments to CFPB about the Universal Mortgage Identifier number and Home Mortgage Disclosure Act The World Privacy Forum has recommended privacy controls for a proposed Universal Home Mortgage Identifier number, along with other privacy protections to the Consumer Financial Protection Bureau in public comments on the Home Mortgage Disclosure Act. The CFPB recognizes

WPF urges National Science Foundation to study Statistical Parity

The World Privacy Forum submitted public comments today to the National Science Foundation in response to its request for information about a national privacy research strategy. WPF urged a research focus on statistical parity and its implementation. Statistical parity is a term WPF’s Pam Dixon coined at the FTC’s Big Data, Tool For Inclusion or Exclusion? workshop in September 2014. Here is Dixon’s definition of the term: