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World Privacy Forum information and materials on medical privacy topics.

World Privacy Forum information and materials on medical identity theft.

Disclosure of the requested information to our organization is in the public interest because it will contribute significantly to public understanding of the NHIN Cooperative and its workgroups. The subject of the requested information will directly illuminate government activities for which information is unavailable otherwise. As far as we can tell, information regarding the NHIN Cooperative Workgroups, a topic of vital public interest, have not been made generally available to the public.

The World Privacy Forum joined a coalition of 41 civil liberties, privacy, and trans-political organizations in a letter requesting a thorough and comprehensive inquiry by the Committee on the Judiciary into domestic surveillance program(s).

Five groups joined the World Privacy Forum in asking for changes to be made to a proposed rule on how medical healthcare claims attachments are handled electronically. The World Privacy Forum and the EFF, EPIC, Privacy Rights Clearinghouse, Privacy Activism and U.S. Public Interest Research Group (U.S. PIRG) asked that physicians be given more control over what parts of health records they send electronically to insurance companies, that psychotherapy notes not be included when sending health records for insurance payment, and that the HIPAA Privacy Rule be rigorously applied to scanned health records.