This coming Thursday, WPF Executive Director Pam Dixon will give a keynote speech on health privacy and security, "The New Healthcare Fraud Continuum." Based on her latest research in health privacy, this talk will be Dixon's first talk about the new fraud continuum, what it is, how it operates, what ...
Video of Congressional Testimony on data brokers. Pam Dixon gave this testimony before the Senate Commerce Committee on December 18, 2013 at a hearing dedicated to shedding light on data broker industry practices and how that affects consumers. The full testimony contains numerous examples of data broker activities, consumer scoring, and discusses the solutions that are needed, including a requirement for data broker opt out.
Senior Identity Theft - FTC -- WPF Executive Director Pam Dixon will be speaking at the Federal Trade Commission Tuesday on the issue of Senior ID theft, and specifically, about medical forms of the crime. Dixon, who wrote the first report on medical ID theft and coined the term for the crime, will be presenting new research at the panel.
Visiting Scholar: Privacy in a Modern Era -- Pam Dixon is a visiting scholar at Portland's PNCA. She is scheduled to speak with students in a round of interdisciplinary classes, and she will also be giving a public keynote at 7 pm in Swigert Commons. Her public lecture is on Modern Privacy.
Pam Dixon to Speak at Churchill Club -- WPF's Pam Dixon will speak on privacy gaps at Silicon Valley's Churchill Club Wednesday, January 23 in San Francisco. The panel is part of International Privacy Day activities and will be moderated by Chris Kelley, Former Chief Privacy Officer of Facebook.
FTC | Mobile privacy – Pam Dixon spoke at the FTC’s May 30 mobile disclosures workshop. The panel focused on exploring privacy in the mobile applications and mobile wireless space. Some of the privacy topics Dixon covered at the workshop included the role and use of unique identifiers in wireless technologies.
Facial recognition -- Pam Dixon of WPF testified at the FTC's Facial Recognition workshop, speaking on a panel about the policy implications of facial recognition technology. The World Privacy Forum's report on Digital Signage was mentioned several times at the hearing, as were the collaborative consumer protection principles the WPF led.
Internet and consumer privacy -- The World Privacy Forum's executive director Pam Dixon will testify about online consumer privacy before the House Committee on Energy and Commerce today.
WPF executive director Pam Dixon testified at a joint subcommittee hearing focused on privacy and the collection and use of online and offline consumer information. Dixon's testimony focused on the new "modern permanent record" and how it is used and created. Dixon said "The merging of offline and online data is creating highly personalized, granular profiles of consumers that affect consumers’ opportunities in the marketplace and in their lives. Consumers are largely unaware of these profiles and their consequences, and they have insufficient legal rights to change things even if they did know." The testimony explored concrete examples of problematic consumer profiling activities.
Data brokers -- WPF will be speaking at the CFP conference on two panels. On June 15, Pam Dixon will participate in a plenary session on data brokers. On June 16, Dixon will moderate a health care privacy panel. This panel will focus on electronic health care in the state of California and the current privacy issues in electronic health exchange.
FTC Privacy Roundtable -- WPF executive director Pam Dixon will testify at the FTC Privacy Roundtable about information brokers and commercial data practices and they impact consumers. Dixon will be discussing the business models of data brokers, issues with smart grids, and opt-out problems, among other issues.
Congressional testimony -- WPF executive director Pam Dixon testified at a joint subcommittee hearing focused on privacy and the collection and use of online and offline consumer information. Dixon's testimony focused on the new "modern permanent record" and how it is used and created. Dixon said "The merging of offline and online data is creating highly personalized, granular profiles of consumers that affect consumers’ opportunities in the marketplace and in their lives. Consumers are largely unaware of these profiles and their consequences, and they have insufficient legal rights to change things even if they did know." The testimony explored concrete examples of problematic consumer profiling activities.
Genetic privacy -- The World Privacy Forum presented a talk at the World Congress in Washington D.C. today on the intersection between genetic privacy and marketing, and on genetic issues and medical identity theft. The presentation exposed the list marketing activities surrounding health care data, and examined how the current loopholes in the recently passed Genetic Information Nondiscrimination Act (GINA) would not necessarily ease issues with incidental collection and use of genetic information.
Medical identity theft is a crime that harms people and it is a crime that hides itself. This combination makes medical identity theft an insidious crime. It can cause extraordinary damages and harms to its individual and institutional victims. And once begun, the harmful effects of this crime can linger in the lives of its victims for years or even decades.
Genetic privacy -- Executive director Pam Dixon presented key issues and potential solutions regarding privacy and Genome Wide Association Studies at the Institute of Medicine's Board on Health Sciences Policy meeting. Her presentation included recommendations to engage in a comprehensive study of certificates of confidentiality, to encourage standards of identifiability, to encourage study of what more uniform standards of privacy and security for researchers might look like, and a recommendation to work toward broad solutions that extend beyond GWAS activities.
The World Privacy Forum has been particularly interested in developments related to EHRs and the NHIN. Given the impetus of the 2004 Executive Order [1] mandating forward movement in these areas, and the broad impact digitized medical records will potentially have on patients and on the healthcare sector, the World Privacy Forum believes that the decisions this Committee and others shaping these efforts arrive at will be of lasting importance. Given the transition of many parts of our society from analog to digital, it is crucial to ask what this digitization will look like and to carefully examine and discuss what form EHRs and related systems should take in regards to patient choice, privacy, and security.