WPF Report - Privacy, the Precision Medicine Initiative, & the All of Us Research Program: Will Any Legal Protections Apply?
Medical treatments tailored to each individual’s physiology and genetic history have long been a dream, but this dream is data-intensive. The most current effort to turn personalized medicine into a reality is the Precision Medicine Initiative (PMI), which will collect and share biospecimens and health data from over a million volunteers for research -- this report analyzes the privacy protections for this initiative.