Patient Privacy

WPF’s new interactive map identifies Health Information Exchanges in California. A Health Information Exchange, or HIE, is technology that enables the electronic movement of health-related information among health care providers and others. HIEs are an increasingly popular way for hospitals, pharmacies, labs, and emergency room physicians to share patient information. HIEs can exchange records across one hospital, across multiple hospitals in a region, or across a whole state. If your health information is being shared through an HIE, your lab test results, medications, medical history, or other clinical information related to your health care may be included in the sharing. See more about HIEs and our California HIE Map here.

  July 15, 2013 New Consumer Tipsheets, FAQ, and Glossary about Health Information Exchanges Patients have a new resource that simplifies the clutter and confusion around Health Information Exchanges. WPF has published a new HIE Tipsheet and FAQ. These resources are written for consumers, and delivers bite-sized, digestible information about the most important privacy aspects

Data breach — The state of California issues a first-ever statewide data breach report. In 2012, 2.5 million Californians had their data breached. Of those breached, the study found that The report found that “1.4 million Californians would have been protected if companies had encrypted data when moving or sending the data out of the company’s network.”

Arizona School of Law — Pam Dixon participated as a discussant and contributor to the Arizona School of Law’s private workshop on the topic of the future of privacy. Key areas of discussion included the European Union’s Right to be Forgotten proposal, consent and health privacy, and Do Not Track.

July 21, 2012 San Diego, California — Today the World Privacy Forum filed comments on California’s plan to harmonize existing California state law to federal health privacy laws. California’s health privacy law, the CMIA, offers Californian’s stronger privacy protections than national level health privacy laws. WPF urges California to reconsider its plan to weaken Californian’s privacy. Executive director Pam Dixon said “The harmonization plan coming out of California’s Department of Health and Human Services is not in harmony with California patients and their health privacy.”