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Online Privacy

Key genetic oversight report released; includes changes based on World Privacy Forum comments

SACGHS | Oversight of genetic testing -- The Secretary's Advisory Committee on Genetics, Health and Society (SACGHS) released its final report on Oversight of Genetic Testing (U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of Health and Human Services, April 2008, PDF, 276 pages). This is a substantial, thoughtful report that is likely to have a long-term impact on the field. The World Privacy Forum submitted formal written comments regarding this report when it was in draft form, and also appeared before the Committee in person in February of 2008 to discuss additional information relevant to the report. The final report reflects the World Privacy Forum comments and testimony. The report now includes a discussion about Direct to Consumer advertising and marketing as well as related privacy issues. The discussion in the final report also now acknowledges the implications of Direct to Consumer marketing of genetic tests regarding online privacy. The final report also reflects generally increased attention to privacy issues.

World Privacy Forum files comments on behaviorally targeted ads online; requests separate rulemaking for sensitive medical information

Behaviorally targeted advertising | FTC proposed rules -- The World Privacy Forum filed comments in response to the Federal Trade Commission's proposed self-regulatory guidelines for companies targeting online advertising to consumers based on consumer behaviors. The WPF requested a separate, formal rulemaking process for determining how sensitive medical information should be handled online regarding behaviorally targeted advertisements. The WPF also discussed genetic data and requests for genetic tests, and noted that genetic information should be included in any definition of sensitive medical information. The WPF reiterated that the definition of personally identifiable information should include IP address, and encouraged the FTC to work from a rights-based approach regarding online advertising. The WPF also urged the FTC to include all fair information practices in any self-regulatory regime, and to enforce the regime directly.

Privacy and consumer groups unveil consensus document recommending expanded consumer rights and protections in the behavioral advertising sector

Consensus document | Consumer rights and protections -- Nine privacy and consumer groups, including the World Privacy Forum, unveiled a consensus document outlining key consumer rights and protections in the behavioral advertising sector. The document is directed toward the Federal Trade Commission, and urges the FTC to take proactive steps to adequately protect consumers as online and other forms of behavioral tracking and targeting become more ubiquitous. The consensus document was filed with the Secretary of the FTC and its commissioners. Behavioral advertising is the focus of the FTC's eHavioral Advertising Town Hall meeting taking place November 1-2 in Washington, D.C. The network advertising sector has a self-regulatory plan, the Network Advertising Initiative, in place, and has had this plan in place since 2000. The consensus document addresses the many areas where the NAI plan has failedto protect consumers.

World Privacy Forum Announces Plans to File FTC Complaint About AOL Search Data Release

Internet privacy -- The World Privacy Forum announced today that it would be filing a complaint with the Federal Trade Commission about the posting by AOL of a portion of its users’ search data on the Internet. While the data was not expressly identified by name, the search queries themselves included in some cases personally identifiable information such as individuals’ names, Social Security Numbers, and myriad other personal information. The World Privacy Forum urges consumers to take precautions when using search engines.

AOL Releases The Unfiltered Search Histories Of 657,000-Plus Users; World Privacy Forum Filing FTC Complaint

AOL released three months’ worth of the detailed search queries of 657,000-plus of its users. The approximately 20 million search queries and the additional data on users’ click-throughs to web sites in the search results are generally highly revealing of individuals’ personal, financial, political, medical, religious, and other preferences as well as the businesses and people they associate with.

Consumer Fraud Alert: Bogus Job Ads Pose Potential Harm to Consumers

The World Privacy Forum and the Privacy Rights Clearinghouse have become aware of a nationwide job scam currently in action. We are advising job seekers to avoid any response to job ads coming from Macrocommerce Intersales and to be aware of the high potential for financial fraud and /or identity theft if they have already responded to job ads from this company.

Press Release: Call Don't Click II: Why it's smarter to order a federally mandated credit report via the phone instead of the internet

A new report issued today by the World Privacy Forum in advance of the March 1 rollout of free credit reports to Midwestern U.S. residents shows that consumers may be better off calling or mailing for their federally mandated free credit report instead of going online for it.

WPF Report: Call Don't Click I - Why It's Smarter to Order Federally Mandated Free Credit Reports via Telephone, not the Internet

Call Don't Click: Why it's smarter to order your federally mandated free credit reports via telephone, not the Interent. A report on www.annualcreditreport.com by the World Privacy Forum, originally published February, 2005, updated March 2005.

Timeline: The evolution of a job scam

Job applicant rights and privacy -- This visual timeline chronicles a year of a job scam. The timeline documents the cities the fake jobs were targeting, dates the jobs posted, the various company names the scam operated under, and the contact names used in the scam. The job scam timeline is documented with screen shots of the job listings and how they looked as posted. The scam is still active.

WHOIS database privacy issues

Online privacy and WHOIS database -- In comments submitted to ICANN's Task Forces 1 and 2 on the WHOIS Database, the World Privacy Forum has asked for tiered access to domain registry information. This would allow domain registrants the ability to keep home phone numbers, addresses, and email addresses private. The WPF has also asked that personal information in the WHOIS database not be made available to marketers.

Consumer fraud alert: job scams

Consumer Alert -- The World Privacy Forum and the Privacy Rights Clearinghouse have become aware of a nationwide job scam currently in action. We are advising job seekers to avoid any response to job ads coming from Unk Electronics, Macrocommerce Intersales, and Nanjing Panada Electronics, and to be aware of the high potential for financial fraud and or identity theft if they have already responded to job ads from these companies.

Inaugural World Privacy Forum Report, 11 November 2003

Job Searching in the Networked Environment: Consumer Benchmarks -- The World Privacy Forum officially launches with this inaugural report, a study a year in its research on the job search sector. This study, The 2003 Job Search Privacy Study: Job Searching in the Networked Environment: Consumer Benchmarks , documents job applicant privacy across the job search industry from resume writers to job search sites to resume blasters and other parts of the job search infrastructure.

Resume Database Nightmare: Introduction

Pam Dixon, during the course of researching a separate study of resume databases, has discovered serious consumer privacy issues in resume databases that rise to the level of deserving immediate consumer notice. This report, below, highlights her findings. The report itself is comprised of a consumer notice, which is based primarily on public documents. The report also contains policy recommendations and job seeker tips.

Resume Database Nightmare: "Resume Sale" at HotResumes.com

According to legal documents, HotResumes.com sold 4,941 resumes and/or email addresses to Biotechcareers.com for .33 cents each in a sale that was invoiced on November 30, 2002. This invoice was made public and was published as part of a lawsuit against Mr. Monastra ( Medzilla vs. Optimum Intelligence et al .) [10]. The invoice was noted as a "resume sale" and it was marked as paid. A copy of the invoice is in Appendix A.

Resume Database Nightmare: Biotech and Pharmaceutical Resume Database Privacy Issue

In July, 2002, Dr. Frank Heasley, the owner of Medzilla.com, a biotechnology job site, became aware that Jason Monastra, who was at the time a recruiter and the owner of Optimum Intelligence, was making a large number of resume downloads from the Medzilla resume database. Dr. Heasley quickly discovered that Jason Monastra was also the owner of a new job search site called Biotechcareers.com and had downloaded approximately 2,400 resumes from the Medzilla database within the space of several weeks [14].

Resume Database Nightmare: Recommendations to Job Seekers

In any job search, it is undeniably important to circulate a resume. However, job seekers need to carefully minimize privacy issues related to resumes while still maintaining appropriate exposure to employers. It is important for all job seekers to understand that resume databases vary widely in privacy practices and controls. Learning to choose a quality job search site and resume database with good privacy practices has become an important part of your job search if you plan to use the Internet as a job search tool.

Resume Database Nightmare: Contributors

The Honorable Judge Barbara Rothstein’s docket clerk provided valuable assistance to researchers, as well as a timely copy of the Medzilla, Inc. v Optimum Intelligence LLC, et al Case No. CO2-2122R docket. Claudia B. Farrell of the FTC assisted in identifying documentation for researchers. Beth Givens, director of the Privacy Rights Clearinghouse, made significant and helpful contributions to this document.

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