To see the research and use this data visualization : Each jurisdiction or country in the world has an associated country card with extensive data governance information and links. The power of this data visualization is to filter and sort the country cards to reveal patterns and regional details. Filter ...
A PATIENTS’ GUIDE TO HIPAA: NEW E-BOOK + COMPLETE UPDATE For immediate release 5 March 2019 Oregon : World Privacy Forum’s classic and highly popular health privacy resource for consumers, A Patient’s Guide to HIPAA, has been given a complete end-to-end update and is now also available as an ebook. ...
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India and Privacy -- WPF has researched privacy extensively in India, and has documented a number of key privacy issues in a video series. So far, 5 videos in the series have been released. All of the videos were shot on location in India and feature Pam Dixon, with videographer Blake Hamilton. These videos offer a rare and early glimpse into privacy interactions and issues in India
HIE interactive map -- WPF has posted a new interactive map of health information organizations and exchanges in California. This is a map-in-progress, and we will be adding data to the map in stages.
World Privacy Forum information and materials on medical privacy topics.
Consumers can learn about Medical Identity Theft, what how to avoid it, and what actions to take if you are a victim.
On Feb. 23, 2012, nine signatory organizations published a MultiStakeholder Principles designed to guide the NTIA MultiStakeholder Process, a self-regulatory process to develop voluntary codes of conduct with industry and civil society. The document states: "The US Department of Commerce is proposing a multi-stakeholder process for developing better applications of privacy principles. For the multi-stakeholder process to succeed, it must be representative of all stakeholders and must operate under procedures that are fair, transparent, and credible. We believe the following baseline principles will provide the multi-stakeholder process the legitimacy it needs to succeed."
01/23/2012 GPS tracking | United States v. Jones -- The US Supreme Court unanimously ruled that police must get a warrant before using GPS devices to track criminal suspects. This case was narrow and dealt specifically with a GPS device physically attached to a suspect's vehicle. The concurring opinion of Justice Sotomayor points out that the subtler issues of digital era tracking were not dealt with in this case, for example, cell phone tracking, web site tracking, etc. She wrote: "More fundamentally, it may be necessary to reconsider the premise that an individual has no reasonable expectation of privacy in information voluntarily disclosed to third parties. E.g., Smith, 442 U. S., at 742; United States v. Miller, 425 U. S. 435, 443 (1976)." She continued: "This approach is ill suited to the digital age, in which people reveal a great deal of information about themselves to third parties in the course of carrying out mundane tasks."
World Privacy Forum information and materials on medical identity theft.
Some of the advertising that is done online comes with hooks. Using a variety of technologies, some largely unseen, online advertisers can track online activities, sometimes in profound ways that consumers are not expecting. Not all online advertising has "hooks" that are problematic or that raise privacy challenges. But a type of advertising called "behaviorally targeted advertising" often does. Behavioral advertising has two key components: tracking and targeting.
Congressional testimony -- WPF executive director Pam Dixon testified at a joint subcommittee hearing focused on privacy and the collection and use of online and offline consumer information. Dixon's testimony focused on the new "modern permanent record" and how it is used and created. Dixon said "The merging of offline and online data is creating highly personalized, granular profiles of consumers that affect consumers’ opportunities in the marketplace and in their lives. Consumers are largely unaware of these profiles and their consequences, and they have insufficient legal rights to change things even if they did know." The testimony explored concrete examples of problematic consumer profiling activities.
New Health Privacy Resource -- The Patient's Guide to HIPAA is the first comprehensive guide to medical privacy written expressly for patients with a practical eye as to how to use the law to protect privacy. It is a major privacy resource for patients, written directly and without legalese. The ...
