WPF is urging the National Institutes of Health to do more to properly advise the research community and to protect data subjects in its draft guidance on data management and sharing. WPF is asking for changes to the NIH guidance because in the US, much health research data in the hands of researchers is not subject to the privacy or security rules in HIPAA.
WPF Executive Director Pam Dixon will testify before the full committee of the National Committee on Vital and Health Statistics (NCVHS) regarding emerging privacy concerns in the healthcare environment, including the role of artificial intelligence, patient authorizations, and automated access to patient health information. The NCVHS is the statutory [42 U.S.C. 242k(k)] public advisory body
The Office of Civil Rights in the US Department of Health and Human Services has taken its first enforcement action under the HIPAA right of patient access to health records. HHS announced that it fined a health care provider $85,000 for failing to provide health care records to a patient upon written request, stating in
A PATIENTS’ GUIDE TO HIPAA: NEW E-BOOK + COMPLETE UPDATE For immediate release 5 March 2019 Oregon: World Privacy Forum’s classic and highly popular health privacy resource for consumers, A Patient’s Guide to HIPAA, has been given a complete end-to-end update and is now also available as an ebook. A Patient’s Guide to HIPAA
WPF has written to the US Department of Health and Human Services advising them on their Request for Information (RFI) about possible changes to HIPAA privacy and security protections. The RFI has a number of suggestions that, should they become part of a formal proposal, would significantly weaken HIPAA privacy protections.