Health Privacy
About health privacy, World Privacy Forum key health privacy resources
The World Privacy Forum is extremely active in health privacy, with a long and successful track record of work in this area. We have done groundbreaking work in the area of medical identity theft, as well as substantive analysis and education on critical privacy aspects of health data such as medical research, genomics, and many other issues.
Some of our most frequently accessed health privacy resources include:
* A Patient’s Guide to HIPAA
* Medical Identity Theft Page (resources, reports, more)
* Health privacy tagged materials
* HIPAA tagged materials
* Electronic Health Records tagged materials
* Common Rule and Human Subject Research Protection tagged materials
* Genetic privacy tagged materials
We have many more publications and resources. For a full list of topics and publications, see our key issues page.
See below for health privacy news and content by date.
Senior Identity Theft – FTC — WPF Executive Director Pam Dixon will be speaking at the Federal Trade Commission Tuesday on the issue of Senior ID theft, and specifically, about medical forms of the crime. Dixon, who wrote the first report on medical ID theft and coined the term for the crime, will be presenting new research at the panel.
Senior ID Theft and privacy — Pam Dixon speaks to Los Angeles County social workers and financial abuse support teams today to share WPF’s wealth of information about medical identity theft and how this crime impacts seniors. WISE and Healthy Aging is hosting this important meeting.
India and Privacy — WPF has researched privacy extensively in India, and has documented a number of key privacy issues in a video series. So far, 5 videos in the series have been released. All of the videos were shot on location in India and feature Pam Dixon, with videographer Blake Hamilton. These videos offer a rare and early glimpse into privacy interactions and issues in India
Arizona School of Law — Pam Dixon participated as a discussant and contributor to the Arizona School of Law’s private workshop on the topic of the future of privacy. Key areas of discussion included the European Union’s Right to be Forgotten proposal, consent and health privacy, and Do Not Track.
July 21, 2012 San Diego, California — Today the World Privacy Forum filed comments on California’s plan to harmonize existing California state law to federal health privacy laws. California’s health privacy law, the CMIA, offers Californian’s stronger privacy protections than national level health privacy laws. WPF urges California to reconsider its plan to weaken Californian’s privacy. Executive director Pam Dixon said “The harmonization plan coming out of California’s Department of Health and Human Services is not in harmony with California patients and their health privacy.”