Health Privacy

About health privacy, World Privacy Forum key health privacy resources

The World Privacy Forum is extremely active in health privacy, with a long and successful track record of work in this area. We have done groundbreaking work in the area of medical identity theft, as well as substantive analysis and education on critical privacy aspects of health data such as medical research, genomics, and many other issues. 

Some of our most frequently accessed health privacy resources include:

* A Patient’s Guide to HIPAA

* Medical Identity Theft Page (resources, reports, more)

* Health privacy tagged materials 

* HIPAA tagged materials 

* Electronic Health Records tagged materials 

* Common Rule and Human Subject Research Protection tagged materials

* Genetic privacy tagged materials 

We have many more publications and resources. For a full list of topics and publications, see our key issues page.

See below for health privacy news and content by date.

Events: World Privacy Forum at Consumer Electronics Show

WPF is attending the Consumer Electronics Show in Las Vegas this week. We’re focusing on privacy and health and fitness technology, smart home tech/Internet of Things, and education and kid tech. Throughout the week we will be bringing you a stream of thoughts, images, and short videos via our Twitter and Instagram feeds. After the show, we will

Some Californians receive emails from health insurer with personal details exposed: potential CalINDEX implications?

This week the New York Times reported that some California members of health insurer Anthem Blue Cross received disturbing emails with exposed subject lines related to their sensitive medical information. From the article: “But the emails’ subject lines included member-specific demographic details like age range and language. They also listed possible medical screening tests —

WPF Universal Periodic Review Comments — The Right to Health Privacy: Human Rights and the Surveillance and Interception of Medical and Health Records by Security Agencies

The World Privacy Forum provided an intervention for the Civil Society Consultation on the Universal Periodic Review of the United States recommending that health information should only be disclosed for national security purposes pursuant to a judicial warrant, and that there must be procedures under which record keepers can challenge national security demands for health