Health Privacy

WPF is pleased to announce that Executive Director Pam Dixon’s paper on the topic of collective privacy was selected for inclusion at the Privacy Law Scholars Conference from a large and highly competitive field. The paper is now available at the PLSC website as a confidential download for conference attendees. PLSC provides privacy scholars the

The World Privacy Forum filed detailed comments regarding draft guidance on privacy and medical research to the U.S. Department of Health and Human Services and the U.S. Food and Drug Administration. The proposed guidance, Facilitating Understanding in Informed Consent, is related to consent for human subject research (medical research) and is particularly important. Currently, models of consent are in the process of going digital, which has created a number of challenging problems to solve. In the comments, WPF had several recommendations to improve consent and privacy.

WPF submitted comments to the National Institute of Standards and Technology regarding its Draft Guidelines for Evaluating Differential Privacy Guarantees. The comments approach the NIST Draft Guidance from a policy perspective, and urged changes to some parts of the definitional language in the Draft Guidance. Key areas of the comments include: A discussion of the

This statement was delivered orally to the FTC in its Open Commission Meeting, held on 18 January 2024.  

The World Privacy Forum filed comments regarding the US Federal Trade Commission’s 2023 Notice of Proposed Rulemaking regarding Health Breach Notification. This marks the second set of comments WPF has filed, our first being in 2009 regarding the first iteration of the Health Breach Rule. The comments are technical, and focus on the fundamental challenges