Governance

Earlier this month, WPF attended a joint conference focused on the shifting dynamics of how the Common Rule that governs human subject research in the US will be interpreted amidst new technological shifts such as AI. The department of Health and Human Services is seeking to define what the next steps and new policy frameworks should be to ensure the Common Rule protects individuals in current and future research environments. Details on the presentations, conversations, and key takeaways in the post.

Last week, the World Health Organization held an in-person meeting of its health data collaborative leadership, its first face-to-face meeting of this group in four years. WPF attended as a constituency co-chair. Attendees included: members of the Ministries of Health and partner representation from Kenya, Malawi, Cameroon, Botswana, and Nepal; regional institutes’ representatives from KEMRI Welcome

The Italian Institute for International Political Studies (ISPI) will be holding a High Level Forum on Digital Transformation in connection with OECD. The event will be held 16 May 2022 in hybrid format. WPF will be speaking about what risks exists for consumers arising from illicit use of their personal data, and also approaches for

WPF’s Executive Director Pam Dixon will be presenting at an upcoming OECD Workshop on the topic of data stewardship, access, sharing, and control in regards to national data strategies. WPF will be speaking as a organizational member of the formal civil society stakeholder group at OECD (CSISAC).  The topic of digitalization is one that OECD

WPF is pleased to announce a new project examining the intersection between poverty and privacy in the United States. In the United States, the prevailing discussions about privacy rarely contemplate the poor, or how — or where — the poor or financially stressed may experience privacy challenges. This is also true of many legislative discussions regarding data governance, data protection, and privacy; there is generally not routine scrutiny of the intersection and impacts of proposed statutory language or approaches regarding those who live at or below the poverty level.