Genomic Big Data

WPF paper on collective privacy accepted to Privacy Law Scholar’s Conference

WPF is pleased to announce that Executive Director Pam Dixon’s paper on the topic of collective privacy was selected for inclusion at the Privacy Law Scholars Conference from a large and highly competitive field. The paper is now available at the PLSC website as a confidential download for conference attendees. PLSC provides privacy scholars the

WPF advises National Institutes of Health re: Genomic Data Sharing Policy

WPF filed comments to the National Institutes of Health (NIH) regarding its Genomic Data Sharing Policy. WPF recognizes that NIH is attempting to create a reasonable standard. Nonetheless, WPF urged NIH to better “future proof” its genomic data sharing proposal, and in particular requested NIH to look further into key areas, including the impacts of “genomic big data” and the limits of deidentification.