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Data Ethics

WPF Executive Director Pam Dixon to give talk about Modern Privacy in an AI Era live with Washington State Office of Privacy and Data Protection

WPF Executive Director Pam Dixon will be giving a rare, live one hour Q and A session with the Washington Office of Privacy and Data Protection (OPDP) , which was created by the state legislature in 2016. This will take place in celebration of International Privacy Week, 30 January 2025. ...

WPF advises FDA and HHS on informed consent guidance for medical research

The World Privacy Forum filed detailed comments regarding draft guidance on privacy and medical research to the U.S. Department of Health and Human Services and the U.S. Food and Drug Administration. The proposed guidance, Facilitating Understanding in Informed Consent, is related to consent for human subject research (medical research) and is particularly important. Currently, models of consent are in the process of going digital, which has created a number of challenging problems to solve. In the comments, WPF had several recommendations to improve consent and privacy.

Initial Analysis of the new U.S. governance for Federal Agency use of Artificial Intelligence, including biometrics

Today the Biden-Harris Administration published a Memorandum that sets forth how U.S. Federal Agencies and Executive Departments will govern their use of Artificial Intelligence. The OMB memorandum provides an extensive and in some ways surprising articulation of emergent guardrails around modern AI. There are many points of interest to discuss, but the most striking includes the thread of biometrics systems guidance throughout the memorandum and continuing on in the White House Fact Sheet and associated materials. Additionally, the articulation of minimum practices for safety -impacting and rights- impacting AI will likely become important touch points in regulatory discussions in the U.S. and elsewhere. The guidance represents a significant policy shift for the U.S. Federal government, particularly around biometrics.

Another reminder that student privacy matters: Student doxing through FERPA loopholes

Today Inside Higher Ed wrote an excellent article about the relationship of the Family Educational Rights and Privacy Act (FERPA) and the recent doxing of Harvard students. In short, it was easy to dox the students based on information the college published — legally — about them. FERPA was supposed ...

WPF urges National Institutes of Health to expand privacy guidance for researchers

WPF is urging the National Institutes of Health to do more to properly advise the research community and to protect data subjects in its draft guidance on data management and sharing. WPF is asking for changes to the NIH guidance because in the US, much health research data in the hands of researchers is not subject to the privacy or security rules in HIPAA.

EDPS Giovanni Buttarelli, a guiding force behind GDPR, has passed away

Giovanni Buttarelli, the European Data Protection Supervisor, has passed away. EDPS Buttarelli was an important privacy thinker and strategist, and stands among the giants in privacy. He had a long and distinguished career prior to becoming the EDPS, including spending time as a judge in the Italian judiciary. But it ...

Robot Interviews: AI and the world of work

AI will alter the world of work, both in workplaces and in workplace information ecosystems. Labor experts have a term for negotiating the near and long-term effects of AI: “A fair and just transition.” These and other experts have already begun documenting the emerging changes in the workplace resulting from AI deployments. Some consequences are positive, some are deleterious. No one has a crystal ball with a perfect view of what the future may hold. That's why a key focus now for those interested in AI and the world of work is to research and benchmark what is happening.

Digital Identity Ecosystems

Identity is a data-rich key that acts to unlock all levels of the emerging digital ecosystem. All forms of ID carry some risk, but digital forms of ID, or “dematerialized ID,” cuts across all sectors and generates particularly copious data about people, their behaviors, financial status, associates, and potentially even political and religious views. Over time, distinct patterns emerge from the data and have in the past created new kinds of risks for individuals and groups.....

WPF advises FTC regarding privacy frameworks and knowledge governance; files key comments

The World Privacy Forum has submitted a set of key comments to the US Federal Trade Commission regarding privacy frameworks and governance. The comments introduce the idea of knowledge governance and propose frameworks that will work to solve the serious privacy challenges we face in complex data ecosystems.

ED Pam Dixon calls for a Nuremberg Code of digital ethics, addresses 40th international conference of data protection and privacy commissioners

Speaking to an audience of global Data Protection Authorities in the capstone session of the 40th International Conference of Data Protection and Privacy Commissioners, WPF Executive Director Pam Dixon discussed the central importance that data should be used for a public good, and must above all, should not create harm. ...

Voting system data breach notifications - National Academies of Science recommendations for securing voting systems

The National Academies of Science have released Securing the Vote: Protecting American Democracy . The consensus report richly documents how, during the 2016 presidential election, actors sponsored by the Russian government attacked the US voting and election infrastructure. The report assesses the web of technology infrastructures related to voting, and ...

WPF's schedule at the 39th International Conference of Data Protection and Privacy Commissioners

The World Privacy Forum will be speaking several times during the International Conference of Data Protection & Privacy Commissioners in Hong Kong; here's the schedule, below; we look forward to meeting or catching up with those of you attending, please come by and say hello. Monday 25 September : European ...

A Failure to Do No Harm: India's Aadhaar biometric ID program

WPF has conducted original research on India's Aadhaar, a national biometric ID system, including field research in India during 2010-2014. WPF has published the original research in a peer-reviewed journal, Nature-Springer, and in Harvard-based Journal of Technology Science. The research found that systemic challenges to data protection and privacy exist in the Aadhaar system, challenges which do have potential remedies. Key lessons can be learned for both the US and the EU as biometric systems grow in popularity.

WPF at RightsCon to Present on Digital Identity, Digital Rights

We are honored to be speaking on two panels at this year’s RightsCon, an event that takes place 29-31 March in Brussels, Belgium. Both of our panels will be on the 31 of March. Here is some additional reading and information for each of the panels: Panel 1: Managing Concerns Around Digital Identity, Fri, 9:00-10:15, Innovation, 1st Floor....

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