WPF Asks Presidential Commission to Protect Genetic Privacy

Genetic Privacy | Bioethics — WPF filed comments with the Presidential Commission for the Study of Bioethics today urging the Commission to recognize the need for enhanced genetic privacy protections in a digital world. WPF noted that “The increasing identifiability of genetic data presents major privacy issues for research activities that must be acknowledged and addressed.” WPF suggested four key ways that Certificate of Confidentiality programs could be enhanced for privacy protection, and urged the Commission to speak out about the importance of protecting patient privacy in research activities involving genetic information. “The Commission should advocate providing patients with reasonable controls over research uses of their data as electronic records develop and spread throughout the health care system.” Public comments may be submitted to the Commission until May 25, 2012.

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Posted May 14, 2012 in Blog Post, De-Identification and reidentification, Genetic Privacy, Health Privacy, Identity, Public Comments, Public Policy
Tags: Bioethics, Certificate of Confidentiality, Presidential Commission for the Study of Bioethical Issues

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WPF Asks Presidential Commission to Protect Genetic Privacy

Download WPF’s Comments to the Presidential Commission for the Study of Bioethics (PDF)

Read WPF’s Comments to the Presidential Commission for the Study of Bioethics

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